Patient Board

The Patient Board meets every Monday via Zoom at 11:00 am Eastern Standard Time.

Current Patient Board

Dr. Emily Sirotich PhD (@emilysirotich)
Patient Engagement Co-Lead, Canada.

Monique C Gore-Massy (@GoldenMoe)
Patient Board – Communications
Global Lupus Advocate / Patient Consultant, USA.

Richard A. Howard (@RichAHoward)
Patient Board – Patient Outreach
MBA, Chief Mission Advancement Officer, Spondylitis Association of America, USA.

Laura-Ann Tomasella (@arthritiskidssa)
Patient Board – Communications and Outreach
Arthritis Kids South Africa, South Africa

More Argwings Kodhek 
Patient Board – Communications and Outreach
Founder Lupus Foundation of Kenya, Kenya

Carly Harrison 
Patient Board – Research and Outreach
Chief Research & Innovation Officer, LupusChat, USA

jOhn Wallace (@wallaceUofE)
Patient Board – Communications, Policy and Outreach
Chair: NLRP12; Advisor: Autoinflammatory.UK, United Kingdom

Nadine Lalonde 
Patient Board – Research, Communications and Outreach
Lupus patient and activist for disability rights, Canada

Patient Board Support

Tarin Moni 
Patient Board – Organisation
McMaster University, Canada

Past Patient Board Members

Wendy Costello (@wendycostello2)
Patient Engagement Co-Lead

Naira Ikram (@NairaIkram)
Patient Board – Research and Communications
Duke University, “Psychoneuroimmunology: Causes and Consequences.” Major, USA.

Evelyn Olmedo (@OlmedoEve)
Patient Board – Research
SLE & SCLE Advocate, El Salvador.

Ana Isabel
Patient Board – Patient Resources
Physical Therapist & AS Patient, Spain.